"What we share together will live much longer than we do..."

Like I stated in part one of Bentley's  heart journey, I am not confident in my writing abilities, especially when it comes to more technical writing. But I am going to do my best to explain to the best of my abilities what we have gone through this last couple years with Bentley's heart. Our Journey to have this surgery has been a rocky one. It took us a little over a year to prepare for this final surgery. Including making sure that Bentleys dental work was done and that he have no cavities or infection. The dental work he had before his first surgery was not done very well. They had drilled really close to one of his nerves in his front tooth, and only did half a root canal on his second... I can't blame them because of the v-fib he had gone into. BUT that did make our life a little more difficult. We had to carefully watch his teeth to make sure that an infection didn't happen. He made it the first six months and was able to have his second surgery. But at our de...

Congenitally Corrected Transposition of the Great Arteries. I have been trying for a while to write this. First because I am not good with technical writing and second because I don't always feel like I understand everything. When I do try to read up and understand it better I get overwhelmed, but I will do my best to put it here. Bentley has a unique heart. He has what is called Congenitally corrected Transposition of the Great Arteries. Only .5% of people with a heart defect have this. Which is about 5000 people in the United States. And along with that each case is different. In the heart you have two ventricles that pump blood. The left ventricle, which is the stronger ventricle, pumps blood to the entire body. While the right ventricle pumps blood to the lungs. The two ventricles pump the blood through two main arteries. The aorta and the pulmonary artery. CCTGA occurs in the womb while the heart is still developing and what happens is the left and right Ventricles tw...

First of all, I feel so extremely blessed for all the messages and texts that I have received the last week! It brought so much comfort knowing Bentley had so many people rooting and Praying for him! The day of surgery and the days following were scary and emotional and don’t even know if I can explain how hard it was for Alex and I. But we made it! And  Bentley had a great day today! Today we were able to take out so many tubes and a couple of IVs and he was able to have Jello and Mac and cheese. He even had a visit from Hadley and Grandma and Grandpa which brought some smiles out😊 We still have a long road to recovery, and  we are still in the ICU, but we are just taking it one day at a time. He has been so strong and Brave and I couldn’t be more proud to be his mom♥️ I know it’s hard now, but it’s not the end, I will eventually post an update about his heart and the surgery. But I’ve been running on very little sleep and hope to get some rest tonight. Love Always 💕...