Testing this week!

After two long months, the time has finally arrived for Bentley's Testing! Tomorrow is Pre-op. Tuesday-Wednesday is his cardiac cath procedure and on Thursday is his CT scan. We are hoping by the end of this week we have some answers, and have and a surgery date set.

We are also so glad that Alex's mom can be here this week to take care of Hadley while we are in and out of the hospital. 🧡

We are grateful for all of the prayers in Bentleys behalf, and are grateful for any more as he goes through his testing this week.

Anyway its short today, but I will post an update once we know more.

Lots of Love
Lezlie and Alex

Also we did celebrate Halloween! Even though we have been keeping inside away from germs we still carved pumpkins and put on costumes. We even went up and down our street so the kids got some candy:)

We had an ewok and a spooky ghost!!

Comments

Bentley's Heart-March 6, 2018

Since moving to Tracy, I have realized that a lot of people aren't aware of Bentleys heart. Not that I don't want people to know, I just have a hard time bringing it up. Before I update his condition, I'll just give a little background on what it is. Bentley was born with a rare heart condition called Congenitally corrected transposition of the great arteries (cctga).The easy way to explain it is the arteries on his heart are switched, the larger artery which is supposed pump blood to his body, is pumping blood to his lungs, and the smaller artery which is supposed to pump blood to his lungs, is pumping the blood to his body. Cctga comes in 3 forms and Bentley has the most rare. His Cctga also causes him to have a heart block, which just means his the top and bottom of his heart aren't beating in sync, causing his heart to beat at a slower rate. Most of the times when diagnosed with Cctga kids have other major issues with their hearts and need open hear...

Family Update!

Family: We have been doing fantastic! To start off we Moved! Alex's work bought a new building that had an apartment above it. It is a 2 bedroom so there is plenty of room for the three of us. It is also cheaper rent and we are allowed to have pets! So my family drove my cat Lovey all the way from New Mexico to be with us :) We are enjoying our new ward and are enjoying the nice weather by going on walks to the parks around us. Our sweet kitty Lovey! We also Blessed Bentley and we had lots of family come for his blessing, Alex did a beautiful job and gave such a sweet blessing to our boy. Justin also came to visit! It was fun having him here. We also were able to talk to Dalton on Mothers Day! We did a whole family Skype, it was so fun to have all of us together, and Dalton is doing so good in Brazil. Bentleys Blessing Bentley, Lezlie, Alex Bentley with Grandma & Grandma Smith Bentley with Grandma & Grandpa Richards Skyping with Dalton on Moth...

Bentley surgery update ♥️

Before I was able to update the blog about Bentley’s surgery it got moved up! Surgery was scheduled for November 28. Then on Wednesday of last week the surgeons office called and said they would need to move his surgery later date. However that had a last minute opening on Friday and asked if that would be enough time. We have already been waiting for a couple months so we said we could do Friday! So here I am writing this on my phone from the hospital. 🙂 Let me back up a little bit. The week of November 3 Bentley had a series of tests and procedures to see if he would be a candidate for the double switch surgery. My awesome mother in law came out and took care of Hadley while we were in and out of the hospital that week. He ended up not being a candidate yet, the pressure in his artery still needed to be a little higher before they would consider him a candidate, so we proceeded with our previous plan of just tightening his PA Band. When we found out ou...

"What we share together will live much longer than we do..."

Search This Blog